Assessment of education requirements for patients with rheumatoid arthritis, based on the Polish version of the Educational Needs Assessment Tool (Pol-ENAT), in the light of some health problems – A cross-sectional study
Matylda Sierakowska 1, Małgorzata Klepacka 2, Stanisław Józef Sierakowski 3, Katarzyna Pawlak-Buś 4, Piotr Leszczyński 5, Maria Majdan 6, Marzena Olesińska 7, Wojciech Romanowski 8, Małgorzata Bykowska-Sochacka 9, Sławomir Jeka 10, Justyna Anna Sierakowska 11, Mwidimi Ndosi 12, Elżbieta Krajewska-Kułak 1 1 - Department of Integrated Medical Care, Medical University of Bialystok, Poland 2 - Department of Nephrology, Medical University of Bialystok, Poland 3 - Department of Rheumatology and Internal Diseases, Medical University of Bialystok, Poland 4 - Department of Rheumatology and Rehabilitation, Medical University in Poznań, Poland 5 - Department of Rheumatology and Rehabilitation, Medical University in Poznań and J. Strus Municipal Hospital in Poznań, Poland 6 - Department of Rheumatology and Connective Tissue Diseases, Medical University in Lublin, Poland 7 - Department of Connective Tissue Disease, Institute of Rheumatology in Warsaw, Poland 8 - Poznań Centre of Rheumatology in Śrem, Poland 9 - Dr.Jadwiga Titz-Kosko Regional Hospital for Rheumatic Diseases in Sopot, Poland 10 - Department of Rheumatology and Connective Tissue Diseases, Collegium Medicum, Bydgoszcz, Poland 11 - Department of Foreign Languages, Medical University, Bialystok, Poland 12 - Academic & Clinical Unit for Musculoskeletal Nursing, University of Leeds, Leeds, United Kingdom Ann Agric Environ Med 2016; 23 (2): ICID: 1203906 Article type: Original article
Introduction. Patients with chronic rheumatoid arthritis (RA) need advice in order to face the problems of everyday life, as well as suffering associated with the disease. Health professionals should attempt to raise the level of resourcefulness and independence of the patient. Objective. To assess the relationship between the deficit of knowledge about RA and the degree of pain, fatigue, morning stiffness, assessment of disease activity as well as functional efficiency. Materials and method. The study was conducted on 277 patients with RA in 7 rheumatologic centres in Poland. The method applied was the questionnaire Pol-ENAT (0–156); HAQ DI (0–3); analog scales (0–100). Results. Mean (SD) age was 53.28 (13.01) and disease duration 13.70 (10.63) years. The mean (SD) value was 54.93 (23.17) for pain, 52.97 (21.98) for fatigue, 48.28 (24.76) for morning stiffness (0–100 mm). HAQ DI was 1.40 (0.66), with an upward trend with duration of disease (p<0.001).
There was a positive correlation between the demand for knowledge about the movement (r=0.194; p=0.001), self-care (r=0.134; p=0.026), assistance/support(r =0.163; p=0.006) and morning stiffness experienced. There was a negative correlation between the need for knowledge concerning managing pain, feelings and the arthritis process and daily ability assessed with HAQ DI. Conclusions. The study shows that health education should be targeted at young patients with early RA. In the case of the severity of morning joints stiffness, there is a need to increase knowledge about the methods of mobility aids, self-care and the possibility of obtaining support.
DOI: 10.5604/12321966.1203906 PMID 27294648 - click here to show this article in PubMed